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News 2005

News 2006
News 2005
News 2004
News 2003
 

National Conference
on Eating Disorder Legislation
 &
State Advocacy Summit

June 29-July 1, 2005 «Washington, D.C.

 

Historic Results

The 2005 conference resulted in the completion of the Eating Disorders Dream Bill and the setting of a course for changing public policy in the United States. In the months following the conference the EDC:

Succeeded in Getting Congress to Ask for CDC Reporting
«
Succeeded in Getting Congress to Ask for Expanded Prevention
«
 
Recruited a Member of Congress to Introduce the ED Dream Bill
«
Helped Launch a Federally Funded Report on Treatment Efficacy
«

Visit the Web pages for the 2005 National Conference & State Advocacy Summit.

 


Marathon Runner Raises Awareness and $5,700

Heather cruises her way to a 1:44:10

June 2005 - Heather Warnken laced up her running shoes and took eating disorder awareness on the road. She trained for the Napa Valley Marathon, and also raised $5,700 for the eating disorders advocacy!

"It was a perfect day! This was one of the most incredible experiences of my life!" she said after the race.

It's not too late to make an online donation in recognition of Heather's fantastic run! click here.

(L.) Heather Warnken on the run!

 


Coalition Welcomes

Eating Disorder Referral and Information Center

May 4, 2005 - The most comprehensive and easiest to search database of eating disorder treatment professionals in the world is now a member of the Eating Disorders Coalition. The Eating Disorder Referral and Information Center (EDRIC) receives 2,300 visitors daily on their EDReferral.com Web site. Coalition membership will enhance the EDC's ability to reach more treatment professionals and will enable EDReferral.com to offer detailed information on policy and activism. Visit EDRIC at www.edreferral.com.


 


EDC Launches National College Campus Tour

January 2005 - This spring, survivors of life-threatening eating disorders and breast implant surgeries are telling their stories to young women nationwide. The Extreme Measures Speaking Tour is an educational project of the Eating Disorders Coalition for Research, Policy & Action and the National Council of Women's Organizations (NCWO). The tour is currently scheduled for 12 colleges and universities in California, Texas, New York, New Jersey, and Washington, D.C.

The tour has generated intense media interest in the risks associated with extreme dieting and implant surgery. The EDC and NCWO wanted to focus on colleges with large undergraduate populations of young women. For more information about the tour, visit www.noextrememeasures.org.

Below left to right: Breast implant survivor Kacey Long, eating disorder survivors Rachel Beckman, Svenja Menschig.


EDC Forms Partnership with Suicide Prevention Action Network

March 11, 2005 - The Suicide Prevention Action Network, a Washington, D.C.-based advocacy organization, is now working with the EDC to promote eating disorder awareness among SPAN members nationwide. The two groups are working on sharing risk reduction messages and combining efforts on Lobby Day activities in Congress and around Washington.

The EDC actively supported the Garrett Lee Smith Memorial Act, a youth suicide prevention effort, which passed Congress and was signed into law at the end of the 108th Congress. SPAN Executive Director Jerry Reed is aware that people with eating disorders are at high risk of suicide. Several
EDC advocates are parents and family members who have lost someone to an eating disorder-related suicide.

As a coalition partner, SPAN will coordinate activities with the EDC but will not pay an annual EDC membership fee. Coalition partners are health-related national groups outside the eating disorder field. Other coalition partners include the American Public Health Association, the National Council of Women's Organizations, the National Institute of Mental Health, and the Mental Health Liaison Group. For information about the Suicide Prevention Action Network, visit www.spanusa.org.



 

March 8, 2005 - The EDC Board of Directors unanimously approved the membership application of A Chance to Heal, a new Philadelphia-based nonprofit organization. The vote by the EDC board of directors raises the coalition total to 26 member organizations.

A Chance to Heal was established in 2004 as donor-advised fund with The National Philanthropic Trust to raise funds to support treatment, promote understanding, and advocate on behalf of those afflicted with eating disorders. The foundation operates the Pennsylvania-New Jersey-Delaware region, and hopes to promote its model nationally. For more information about A chance to Heal, visit their Web site at www.achancetoheal.org.


 

SAMHSA Announces Grants to States, Encourages Consumer Involvement

Marc Lerro of the EDC (l.) and SAMHSA Administrator Charles Curie at the Department of Health and Human Services.

 

March 4 2005 - Eating disorder advocates in each state have a new reason to work with the governor's office: the Mental Health Transformation State Incentive Grant Program. The program, coordinated by the Substance Abuse and Mental Health Services Administration (SAMHSA), offers federal grant funding to states for the purpose of improving mental health services. The grant program is designed to involve a variety of departments and agencies in each state, including a coordinating role with the governor's office.

"One of the important features of the program is that it requires consumer involvement," says Marc Lerro of the EDC. "Eating disorder groups and individuals could be involved in the process as each state prepares its grant application. State chapters of the National Mental Health Association and the National Alliance for the Mentally Ill will be a part of the process in many states, and so should we."

For more information about the Mental Health Transformation State Incentive Grant Program, visit SAMHSA online at http://www.samhsa.gov/Matrix/MHST_TA.aspx

 

 


EDC Financial Information

The EDC is recognized by the IRS as a 501(c)(3) tax-exempt organization.
To request a copy of the EDC's IRS Form 990 for a specific calendar year, write:

EDC Form 990
611 Pennsylvania Ave SE #423
Washington DC 20003-1539

Please indicate the year(s) you wish to receive.

Click here to view the EDC Solicitation Permit.

 

EDC is listed online in

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