Privacy Policy

Last updated: December 5, 2025

This Privacy Policy explains how the Eating Disorders Coalition for Research, Policy & Action (“Eating Disorders Coalition,” “EDC,” “we,” “us,” or “our”) collects, uses, shares, and protects information when you visit www.eatingdisorderscoalition.org (the “Site”) or otherwise interact with us online.

By using the Site, you agree to the collection and use of information in accordance with this Privacy Policy. If you do not agree, you should not use the Site.

1. Information We Collect

1.1 Information You Provide to Us

We may collect the following types of information that you voluntarily provide:

Contact information such as your name, email address, mailing address, organization name, and phone number when you:
- Sign up for newsletters or email updates
- Register for events or advocacy days
- Participate in campaigns such as “email your legislators”
- Fill out forms for membership, partnership, or general inquiries
- Make a donation through the Site (note that payment details are typically processed by a third-party provider)
Advocacy information such as your address, congressional district, or legislator information when you participate in our advocacy tools.
Professional or organizational information when you interact with us on behalf of an organization, coalition member, or partner.
Other information you choose to share in emails, forms, or other communications. We encourage you not to share sensitive personal health information or detailed medical history through the Site.

1.2 Information Collected Automatically

When you visit the Site, certain information may be collected automatically from your browser or device, such as:

IP address
Browser type and version
Device type and operating system
Referring and exit pages
Date, time, and duration of your visit
Pages viewed and links clicked

We may use cookies, pixels, and similar tracking technologies to collect this information and improve the performance and usability of the Site.

1.3 Cookies and Similar Technologies

Cookies are small data files stored on your device that help us recognize your browser and understand how visitors use the Site. Some cookies are necessary for the Site to function, while others are used for analytics or to remember your preferences.

You can control or delete cookies through your browser settings. If you disable cookies, some features of the Site may not function properly.

2. How We Use Your Information

We may use the information we collect for the following purposes:

To operate, maintain, and improve the Site and our services
To respond to your inquiries and provide the information or services you request
To send newsletters, updates, advocacy alerts, and other communications you subscribe to
To support our advocacy, education, and policy initiatives
To process and acknowledge donations and maintain donor records
To manage coalition membership and partner relationships
To analyze usage of the Site for security, performance, and improvement purposes
To comply with legal obligations and protect our rights and the rights of others

3. Legal Bases for Processing (For Visitors in the European Economic Area and United Kingdom)

If you are located in the EEA or UK, our legal bases for processing your personal data may include:

Consent, when you have given us permission, for example by subscribing to communications
Legitimate interests, such as operating and improving the Site, conducting advocacy work, and communicating with supporters
Legal obligations, when processing is necessary to comply with applicable laws

4. How We Share Your Information

We do not sell your personal information. We may share information in the following circumstances:

Service providers that perform services on our behalf, such as email distribution, website hosting, analytics, advocacy tools, or payment processing. These providers are permitted to use your information only as necessary to provide services to us.
Advocacy actions. When you choose to contact legislators or policymakers through the Site, the information you provide (such as your name, address, and message content) will be shared with the intended recipients.
Coalition and partner organizations when appropriate for joint events, campaigns, or initiatives, and consistent with the purpose for which the information was provided.
Legal and safety reasons if we believe disclosure is necessary to comply with law, regulation, legal process, or governmental request, or to protect the rights, property, or safety of EDC, our users, or others.
With your consent or at your direction, when you explicitly consent to additional sharing.

5. Third-Party Services and Links

The Site may contain links to third-party websites and may integrate third-party services such as donation platforms, advocacy tools, analytics providers, or social media platforms. These third parties may collect information in accordance with their own privacy policies. We do not control and are not responsible for the privacy practices of third-party sites or services.

6. How We Protect Your Information

We use reasonable administrative, technical, and physical safeguards designed to help protect personal information from unauthorized access, use, or disclosure. However, no method of transmission over the internet or electronic storage is completely secure, so we cannot guarantee absolute security.

7. Data Retention

We retain personal information for as long as necessary to fulfill the purposes described in this Privacy Policy, unless a longer retention period is required or permitted by law. When information is no longer needed, we will delete or anonymize it where reasonably possible.

8. Your Choices and Rights

8.1 Email Communications

You may opt out of receiving promotional or advocacy emails by following the unsubscribe instructions in those messages or by contacting us using the information below. We may still send you non-promotional messages, such as confirmations of donations or responses to your inquiries.

8.2 Cookies

Most web browsers allow you to control cookies through their settings. Please review your browser settings for more information. If you disable cookies, some features of the Site may not work correctly.

8.3 Rights for EEA, UK, and Certain Other Jurisdictions

Depending on your location, you may have rights regarding your personal information, such as the right to:

Access the personal data we hold about you
Request correction of inaccurate or incomplete data
Request deletion of your data in certain circumstances
Object to or restrict our processing of your data
Request data portability where applicable
Withdraw consent where processing is based on your consent

To exercise any of these rights, please contact us using the details in the “Contact Us” section below. We may take steps to verify your identity before responding.

8.4 California Privacy Rights

If you are a California resident, applicable law may provide you with certain additional rights regarding your personal information. These may include the right to request information about how we collect, use, and disclose personal information, and to request access to or deletion of your personal information, subject to certain limitations. To exercise these rights, please contact us using the information below and note that you are a California resident making a privacy request.

9. Children’s Privacy

The Site is intended for general audiences and is not directed to children under 13 years of age. We do not knowingly collect personal information from children under 13. If we become aware that we have collected personal information from a child under 13 without appropriate consent, we will take steps to delete that information. If you believe we may have collected such information, please contact us.

10. International Visitors

The Site is operated in the United States. If you are accessing the Site from outside the United States, please be aware that your information may be transferred to, stored, and processed in the United States, where data protection laws may differ from those in your country. By using the Site, you consent to the transfer of your information to the United States and the use of your information in accordance with this Privacy Policy.

11. Changes to This Privacy Policy

We may update this Privacy Policy from time to time. When we do, we will revise the “Last updated” date at the top of this page. Your continued use of the Site after any changes become effective constitutes your acceptance of the revised Privacy Policy.

12. Contact Us

If you have any questions about this Privacy Policy or our privacy practices, or if you wish to exercise your rights, you may contact us at:

Eating Disorders Coalition for Research, Policy & Action