UPCOMING EVENT: Join us on September 23rd for EDC Virtual Advocacy Day – Sign up today!
INDIVIDUALS: Join our community and learn how you can become an advocate
ORGANIZATIONS: Become a Member of the Coalition
DONATE TODAY: Support our work by making a donation
WASHINGTON, D.C. (November 10, 2020) – The Eating Disorders Coalition for Research, Policy & Action (EDC) is pleased to announce the addition of two new members to its Board of Directors, Schuyler Bailar, inclusion, body-positivity and mental health advocate, and Dr. Kim Dennis, Medical Director, CEO and Co-founder of SunCloud Health. Read the full press release here.
WASHINGTON, D.C. (October 22, 2020) – On Friday, August 7, the Government Accountability Office (GAO) released a report entitled, “Department of Defense: Eating Disorders in the Military,” which examines how the Department of Defense (DOD) screens, prevents, and provides treatment for eating disorders under the TRICARE health insurance program. The EDC applauds this effort to examine screening, prevention, and treatment access for eating disorders for military members and their families. However, the EDC finds some of the report’s findings concerning.
Read the full statement here.
WASHINGTON, D.C. (October 13, 2020) - The Eating Disorders Coalition for Research Policy & Action (EDC) just released its 2020 Congressional Scorecard to help Americans understand what eating disorders-related policies their Representative and Senators supported during the 116th Congress.
Access the full scorecard here.
WEST PALM BEACH, FLORIDA/WASHINGTON, D.C. (October 7, 2020) – Johanna Kandel, Founder and CEO of The Alliance for Eating Disorders Awareness and Board Member of the Eating Disorders Coalition (EDC), has joined the Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) to represent people with lived experience.
Read the full joint press release here.
WASHINGTON, D.C. (September 24, 2020) – Yesterday, 185 advocates from 35 states and the District of Columbia took part in the Eating Disorders Coalition for Research, Policy & Action’s (EDC) Virtual Advocacy Day.
Read the full press release here.
WASHINGTON, D.C. (July 21, 2020) – The Eating Disorders Coalition for Research, Policy & Action (EDC) would like to thank our advocates for their tireless work over recent weeks in support of the Supporting Eating Disorders Recovery Through Vital Expansion (SERVE) Act.
Read the full statement here.
WASHINGTON, D.C. (July 17, 2020) – On July 1, the Eating Disorders Coalition for Research, Policy & Action (EDC) submitted comments to the offices of Congresswoman Diana DeGette (D-CO) and Congressman Fred Upton (R-MI) in response to their 21st Century Cures 2.0 concept paper.
Read the full press release here.
WASHINGTON, D.C. (June 26, 2020) — The Eating Disorders Coalition for Research, Policy & Action (EDC) applauds the publication of the first report in the United States analyzing the social and economic costs of eating disorders by coalition members the Strategic Training Initiative for the Prevention of Eating Disorders (STRIPED) at the Harvard T.H. Chan School of Public Health and Boston Children’s Hospital, and the Academy for Eating Disorders (AED), in partnership with Deloitte Access Economics
Read the full statement here.
WASHINGTON, D.C. (June 22, 2020) — The Eating Disorders Coalition for Research, Policy & Action (EDC) applauds Senators Jeanne Shaheen (D-NH) and Martha McSally (R-AZ) for their leadership in including report language based on the bipartisan Supporting Eating Disorders Recovery through Vital Expansion (SERVE) Act (S. 2673), within the “National Defense Authorization Act for Fiscal Year 2021” (NDAA) that was voted through in the Senate Armed Services Committee (SASC) last week.
Read the fulll press release here.
WASHINGTON, D.C. (June 16, 2020) — In a 6-3 decision reached yesterday morning, the Supreme Court of the United States ruled that if an employer fires an employee on the sole basis of that individual identifying as LGBTQIA, this unequivocally violates Title VII discrimination protections in the Civil Rights Act. The Eating Disorders Coalition for Research, Policy & Action joins advocacy organizations around the country in celebrating this landmark decision by the Supreme Court
Read the full statement here.
WASHINGTON, D.C. (June 5, 2020) — The EDC Board of Directors is committing to listen more, think more, act more, show up more, be more—to examine where we fall short in advocating for systemic change.
Read the full statement here.
WASHINGTON, D.C. (May 11, 2020) — The Eating Disorders Coalition for Research, Policy & Action (EDC) applauds the House of Representatives and Senate letters urging the Department of Defense’s Defense Health Agency (DHA) to permit telehealth service coverage, including mental health, under TRICARE during the COVID-19 pandemic.
Read the full press release here.
WASHINGTON, D.C. (May 6, 2020) – Last month, the Eating Disorders Coalition for Research, Policy & Action responded to a Request for Information (RFI) from the Senate Committee on Finance to submit data, findings, factors, and gaps in health insurance coverage contributing to poor maternal health outcomes in the United States. The EDC’s comments will be considered by the Committee as a maternal health legislative package is under development.
Read the full press release here.
WASHINGTON, D.C. (May 4, 2020) — The Eating Disorders Coalition for Research, Policy & Action applauds the decision made by the Centers for Medicaid and Medicare (CMS), in coordination with the Administration, to expand Medicare coverage to ensure audio-only telephone services are covered during the COVID-19 public health crisis.
Read the full statement here.
WASHINGTON, D.C. (April 9, 2020) – During this unprecedented time in our nation’s history, the Eating Disorders Coalition for Research, Policy & Action remains energetic, strident, and whole-hearted in our mission to serve the eating disorders community. As your voice on Capitol Hill, we work each day to ensure that federal policy advances critical access to eating disorders treatment and ensures continuation of health insurance coverage. We continue to work on these important provisions in subsequent federal relief packages.
Read the full statement here.
WASHINGTON, D.C. (March 18, 2020) – Last month, the Eating Disorders Coalition for Research, Policy & Action led a letter with the support of 26 organizations to Congress, expressing strong support for the bipartisan Nutritional Counseling Aiding Recovery for Eating Disorders Act of 2019 (Nutrition CARE Act) (H.R. 3711/S. 2907), and urging them to bring this bill forward for consideration.
Read the full press release here.
EDC Advocacy Day will now take place on Wednesday, September 23rd, 2020.
Registration is now open through August 19, 2020.
The community will be advocating on two federal policy initiatives in 2020 —expanding Medicare coverage for persons with eating disorders, and eliminating barriers for eating disorders treatment for servicemembers and their families.
WASHINGTON, D.C. (February 3, 2020) – In December, the Eating Disorders Coalition for Research, Policy & Action submitted a letter to the offices of Congresswoman Diana DeGette (D-CO) and Congressman Fred Upton (R-MI), urging the Representatives to consider including the text of the bipartisan Nutritional Counseling Aiding Recovery for Eating Disorders Act of 2019 (Nutrition CARE Act) (H.R. 3711/S. 2907), within the planned Cures 2.0 legislative package. A copy of the letter can be accessed here.
Read the full press release here.
WASHINGTON, D.C. (December 23, 2019) – In March, the Eating Disorders Coalition for Research, Policy & Action joined researchers and advocates for a meeting hosted by the US Department of Health and Human Services (HHS), Office on Women’s Health (OWH) entitled, “How to Talk About Healthy Weight and Healthy Eating: A Cross-Disciplinary Dialogue on Messaging to Promote Healthy Behaviors and Positive Body Image.” This meeting was a part of the implementation of the Anna Westin Act, which passed within 21st Century Cures (P.L. 114-255). An executive summary of the meeting can be found here, and a full report can be found here.
Read the full press release here.
WASHINGTON, D.C. (November 21, 2019) –The Eating Disorders Coalition for Research, Policy & Action celebrates the introduction of the bipartisan Senate companion legislation of the Nutrition Counseling Aiding Recovery for Eating Disorders (Nutrition CARE) Act of 2019 led by Senator Lisa Murkowski (R-AK) and Senator Maggie Hassan (D-NH).
Read the full press release here.
WASHINGTON, D.C. (October 28, 2019) – The US Department of Labor, US Department of Health and Humans Services, and the US Department of the Treasury released guidance last month entitled, “FAQs About Mental Health and Substance Use Disorder Parity Implementation and the 21st Century Cures Act Part 39,” providing additional direction to insurance plans, issuers, and outside stakeholders in an effort to promote compliance with the Mental Health Parity and Addiction Equity Act of 2008 (MHPAEA). The Eating Disorders Coalition for Research, Policy & Action (EDC) applauds the Departments additional guidance, including new clarifications that will enhance insurance coverage for eating disorders as a result of the Anna Westin Act provisions included within the 21st Century Cures Act (P.L. 114-255).
Read the full statement here.
WASHINGTON, D.C. (October 23, 2019) – Military members and their families have higher prevalence rates of eating disorders than the civilian population, with an estimated 7-8% of servicemembers affected by this serious mental illness. Furthermore, studies show that over 20% of children of servicemembers and 34% of female active duty military members are at risk of eating disorders, and according to a recent study 16% of female veterans meet the diagnostic criteria for an eating disorder. The mental health ramifications of eating disorders are unlike any psychiatric illness, due to a high mortality rate, only second to that of opioid use. This high mortality rate, coupled with complex co-occurring medical conditions and the numerous issues our military members and families face with the ability to access eating disorders treatment, demand the Senate to take action.
WASHINGTON, D.C. (September 26, 2019)—The Eating Disorders Leadership Summit’s virtual gathering in August highlighted the importance of unity, communication, and collaboration across the field of eating disorders.
WASHINGTON, D.C. (September 19, 2019)—The Eating Disorders Coalition for Research, Policy and Action (EDC) Board President presents oral comments today at the National Advisory Mental Health Council (NAMHC) 257th Meeting. The NAMHC plays an integral role in advising the Secretary of the U.S. Department of Health and Human Services; the Director of National Institutes of Health; and the Director of National Institute of Mental Health on policies and programs that support mental health research, research training and other programs of NIH.
Read the full statement here.
WASHINGTON, D.C. (September 5, 2019)—The Eating Disorders Coalition for Research, Policy and Action (EDC) is proud to welcome the Academy for Nutrition and Dietetics (AND) and the International Association of Eating Disorders Professionals (iaedp) as the latest additions to the growing EDC family.
Read the full statement here.
WASHINGTON, D.C. (July 11, 2019) – While often not discussed, eating disorders affect 3-4% of the senior population, and 6% of females and 3% of males with disabilities. Eating disorders for older Americans and Americans with disabilities are particularly serious given the likelihood of co-occurring chronic diseases or illnesses that already compromise a person’s health. Studies show this population is more likely to have an eating disorder compared to the general population.
Read the full statement here.
WASHINGTON, D.C. (May 17, 2019) – The Eating Disorders Coalition (EDC) celebrates the U.S. House of Representatives passage of the Marketing and Outreach Restoration to Empower Health Education Act of 2019 [Strengthening Health Care and Lowering Prescription Drug Costs Act] (H.R. 987), which provides critical reforms and funding to support the Affordable Care Act (ACA). This legislation immediately follows the passage of the Protecting Americans with Preexisting Conditions Act of 2019 (H.R. 986), which the EDC successful advocated for during our EDC Capitol Hill Advocacy Day.
Read the full statement here.
WASHINGTON, D.C. (May 15, 2019) – Military members and their families have higher prevalence rates of eating disorders than the civilian population, with an estimated up to 7-8% of servicemembers affected by this serious mental illness. Particularly, research shows that 34% of female active-duty servicemembers and 20% of female adolescent dependents are at risk of an eating disorder, and 16% of female veterans are affected by an eating disorder. The high mortality rate and strong correlation between post-traumatic stress disorder (PTSD), military sexual trauma, and eating disorders among servicemembers and their families demonstrates an alarming need in Congress to ensure early intervention and access to treatment for this life-threatening disorder.
Read the full statement here.
WASHINGTON, D.C. (May 10, 2019) –The Eating Disorders Coalition (EDC) and 142 advocates representing 27 states and the District of Columbia participated in the EDC’s annual Capitol Hill Advocacy Day, championing stabilization of the Affordable Care Act (ACA) as well as critical new legislation ensuring individuals and families covered by Medicare have access to the medical nutrition therapy needed to initiate and sustain recovery from eating disorder illnesses.
Read the full statement here.
WASHINGTON, D.C. (April 10, 2019) – The Eating Disorders Coalition joined scholars, advocates and advisors for a convening on March 29 hosted by the U.S. Department of Health and Human Services, Office of Women’s Health (HHS/OWH) entitled, “How to Talk About Healthy Weight and Healthy Eating: A Cross-Disciplinary Dialogue on Messaging to Promote Healthy Behaviors and Positive Body Image”. This meeting served as the latest iteration in implementation of the EDC’s flagship legislation—Anna Westin Act, which passed in 21st Century Cures (P.L. 114-255).
Read the full statement here.
WASHINGTON, D.C. (March 26, 2019) – The U.S. Department of Justice (DOJ) disclosed a surprising reversal to the U.S. Court of Appeals for the Fifth Circuit that the court should uphold the December judgment by Judge Reed O’Connor of the Federal District Court in Fort Worth, Texas that the Affordable Care Act (ACA) should be eliminated in its entirety. Previously, the DOJ only supported ending coverage for pre-existing conditions within the ACA.
Read the full statement here.
WASHINGTON, D.C. (March 14, 2019) – The U.S. House of Representatives majority Energy and Commerce Committee has declared an investigation into health insurance companies that sell short-term, limited duration insurance (STLDI) plans. The Eating Disorders Coalition supports the majority Committee’s decision to examine these policies further as STLDI plans have a history of discriminating against individuals with pre-existing conditions.
Read the full statement here.
WASHINGTON, D.C. (March 8, 2019) – The Eating Disorders Coalition (EDC) joins our mental health colleagues in aligning with Judge Spero’s recent decision in Wit v. United Healthcare Insurance Company as a step forward in ensuring patients and their families receive the mental health and substance use disorder services they need and deserve. Judge Spero found United Behavioral Health (UBH), UnitedHealth Group’s unit managing services for mental illness and substance use disorder in private health plans created policies to discriminate against patients with mental health and substance use disorders. The 11 plaintiffs in the case of Wit v. United Healthcare Insurance Company represent over 50,000 patients who were denied care under UBH discriminatory policies. The main plaintiff in the case, Natasha Wit sought coverage for treatment of multiple chronic conditions, including a severe eating disorder and was repeatedly denied treatment by UBH.
Read the full statement here.
The Eating Disorders Coalition (EDC) is proud to share its focus on two new federal policy initiatives in 2019—one centered on expanding Medicare coverage for persons with eating disorders, and the other concentrated on protecting provisions in the Affordable Care Act (ACA) affecting patients with the serious mental illness of eating disorders and their families.
To read the full letter, click here.
WASHINGTON, D.C. (January 15, 2019) — At the beginning of 2019, the Eating Disorders Coalition for Research, Policy & Action (EDC) Board of Directors welcomed new executive leadership for the organization. Chase Bannister, MDIV, MSW, LCSW, CEDS has been elected to serve as Board President for a two-year term alongside Board Vice President Molly McShane, MD, MPH, CEDS.
Read the full press release here
WASHINGTON, D.C. (October 25, 2018) — The Eating Disorders Coalition (EDC) is dismayed by recent New York Times media reports of an attempt by the Administration to roll back civil rights. The Administration, through the Department of Health and Human Services, seeks to drop meaningful Title IX protections, thereby effectively endorsing sex discrimination in education programs receiving government financial assistance. With over 2 million individuals identifying as transgender or gender-diverse in our nation, such a change would be fundamentally detrimental to these persons, with a radically toxic effect upon their health and well-being. Worrisomely, the proposed action opens the door for the erasure of further protections of LBGT persons, particularly with respect to vital and affordable health and mental health care services.
Read the full statement here.
The Eating Disorders Coalition wants Americans to know where their Representatives and Senators stand in support of eating disorders policy priorities.
The EDC compiled a Congressional scorecard to inform Americans about Members of Congress' record of support for eating disorders policy. The following scorecard reflects how each Member of Congress has supported eating disorders policy during the 114th and 115th Congresses. Each Member is assigned a letter grade based on the number of policy items they have led or supported.
This scorecard is not an endorsement of any candidate by the Eating Disorders Coalition or its members.
WASHINGTON, D.C. (September 28, 2018) — This Wednesday, Congress passed the Fiscal Year (FY) 2019 Department of Defense and Labor, Health and Human Services, and Education Appropriations Act, 2019 and Continuing Appropriations Act, 2019 (H.R. 6157) report for LHHS includes language to integrate the “Education and Training on Eating Disorders” for health care professionals authorized by the Anna Westin Act through 21st Century Cures (P.L. 114-255) into the U.S. Health Resource Services Administration (HRSA) Bureau of Health Resource’s Primary Care Training & Enhancement Program. The President is expected to sign H.R. 6157 into law by this Sunday. This marks the second fiscal year in a row that Congress included the integration of eating disorders training within this funding.
Read the full report here.
On Sept. 26, 2018, the federal appropriations bill authorizing funding for the U.S. Department of Health and Human Services was passed by the House of Representatives and is on its way to the President’s desk for a signature this week. Accompanying the legislation is a Congressional conference report that includes a much needed recommendation for the U.S. Centers for Disease Control and Prevention (CDC) to assist states in collecting data about eating disorders in national health surveillance systems.
Read the full press release here.
Today, the U.S. Department of Health and Human Services (HHS) Substance Abuse and Mental Health Services Administration (SAMHSA) awarded the first grant for a new federal program that would provide $3.75M over five years for a Center of Excellence for Eating Disorders. SAMHSA awarded the University of North Carolina at Chapel Hill as its Center of Excellence for Eating Disorders, led by Dr. Christine M. Peat, Assistant Professor in the Department of Psychiatry and Clinical Instructor in the Department of Neurosurgery at University of North Carolina at Chapel Hill.
Read more about it here.
Laura Donahue joined the EDC board in August 2018. Read more about our newest board member here.
Washington - Today the U.S. House of Representatives voted to pass the National Suicide Hotline Improvement Act. The Senate unanimously passed the same bill in October 2017. Read the full statement: here.
The Eating Disorders Coalition compiled an infographic summary of the new Center of Excellence for Eating Disorders Grant Application, resulting from the work of the Anna Westin Act passage and eating disorder community’s advocacy. View the Press Release here if you missed it yesterday
Recently a bipartisan group of fifty-one Senators and Members of Congress, led by Sen. Amy Klobuchar [D-MN], Shelley Moore Capito [R-WV], Tammy Baldwin [D-WI] and Rep. Ted Deutch [D-FL] and Ileana Ros-Lehtinen [R-FL], sent a House and Senate letter to the U.S. Department of Health & Human Services Secretary Azar, urging the full-scale implementation of Section 13006 “Education and Training on Eating Disorders” for health care professionals authorized by the Anna Westin Act through 21st Century Cures (P.L. 114-255).
This past Friday, the Eating Disorders Coalition submitted mental health parity
comments for an open comment period to the Department of Labor, Department of Health & Human Services, and Treasury (“The Departments”), urging strategic changes in mental health parity guidance to better assist those affected by eating disorders to receive treatment coverage.
The Eating Disorders Coalition Applauds Congressmen Seth Moulton (D-MA) & Walter Jones (R-NC) for Leading a Bipartisan Letter to Investigate Eating Disorders Prevention and Treatment for Servicemembers and Their Families
Today, House of Representatives Armed Service Committee Members Congressman Seth Moulton (D-MA-6) and Walter Jones (R-NC-3) sent a bipartisan letter with 30 other Members of Congress to the U.S. Government Accountability Office (GAO) to request a comprehensive study of the state of prevention and treatment of eating disorders for military members and their families by December 14, 2018.
CALLING ALL MILITARY MEMBERS & FAMILIES! In order to better understand access to care issues and develop a grassroots network of advocates across the U.S., the EDC & Residential Eating Disorders Consortium (REDC) have teamed up on a survey to collect information from military members and their families who are affected by eating disorders.
Today, Congress passed the Fiscal Year (FY) Consolidated Appropriations Act of 2018 (also known as the “Omnibus”) (Senate Amendment to H.R. 1625). The Explanatory Report Language includes language to integrate the “Education and Training on Eating Disorders” for health care professionals authorized by the Anna Westin Act through 21st Century Cures (P.L. 114-255) into the U.S. Health Resource Services Administration (HRSA) Bureau of Health Resource’s Primary Care Training & Enhancement Program.
